Community participation in research ensures that studies are relevant to wider society. A particular study might have clear scientific goals but often communities have broader aims such as health improvements or reducing in rates of illness. Reaching these goals for society can only be achieved by greater public and patient involvement in research.
Community participation in aMASE is essential, not only for the success of the study but to ensure that the needs of migrants (as well as people living with HIV) remain central to the survey. Representatives from community-based and non-governmental organizations (CBNGOs) have been part of the design and conceptualization of the project and we aim for that collaboration to continue throughout the life-cycle of the study.
Community Advisory Group
A Community Advisory Group (or CAG) was formed to provide feedback to the research team about the aMASE Study methods and instruments. CAG members were chosen from nine countries around Europe. Each CAG member is from a community based organisation that provides services or advice to migrant communities.
Community Advisory Group Members
|Koen Block||Belgium||European AIDS Treatment Group|
|Maureen Louhenapessy||Belgium||Sidaids Migrants/Siréas asbl|
|Alain Volny-Anne||France||European AIDS Treatment Group|
|Ramazan Salman||Germany||Ethno-Medical Center Germany|
|Anna Maria Luzzi||Italy||Istituto Superiore della Sanità|
|Anna Coluzzi||Italy||Istituto Superiore della Sanità|
|Wim Zuilhof||The Netherlands||STI Aids Netherlands|
|Tatiana Mouhebati||The Netherlands||STI Aids Netherlands|
|Pedro Silverio Marques||Portugal||GAT – Grupo Português de Activistas sobre Tratamentos VIH/SIDA Pedro Santos (Portuguese Group of Activists about HIV/AIDS treatments Pedro Santos) SER+ Associação Portuguesa para Prevençao e Desafio à SIDA (Portuguese Association for AIDS prevention and Challenge)|
|Miguel Vázquez||Spain||Grupo de Trabajo sobre Tratamientos del VIH (gTt-VIH)|
|Alberto Martín-Pérez||Spain||Federación estatal de lesbianas, gays, transexuales y bisexuales.|
|Jenifer Rebollo||Spain||Federación estatal de lesbianas, gays, transexuales y bisexuales.|
|Agata Blaszczyk||United Kingdom||N/A|
|Godwyns Onwuchekwa (Chair)||United Kingdom||Godwyns Enterprise|
|Bisi Alimi||United Kingdom||Bisi Alimi Consultancy|